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The community wins together – essential aspects of hemophilia in Romania and Europe

The community wins together – Essential aspects about hemophilia in Romania and…

Dear friends,

The difficult burden of the disease makes us aware that involvement of…

Dear friends,

The difficult burden of the disease makes us aware that involvement of everyone, patients, parents, doctors, supporters, together with the responsible institutions, will bring in the near future, permanent access to treatment and multidisciplinary care, thus leading to a life. without major restrictions for hemophilia patients.

The Romanian Hemophilia Association (ARH) represents the interests of all patients with hemophilia and vonWillebrand’s disease in our country, being the only patient organization in Romania recognized and affiliated as a full member within the World Federation and the European Hemophilia Consortium.

Dedicated doctors, parents, patients with haemophilia, understood how important it is to become the spokespersons for our life interests, which is why, in our country, the Romanian Hemophilia Association was founded in 1992, following the efforts of Prof. Margit Serban and Mr. Conf. Daniel Lighezan, to whom we give full gratitude for the effort, energy, devotion and permanent effort they have in increasing the quality of life of patients with haemophilia in Romania. The Romanian Hemophilia Association has been affiliated with the World Hemophilia Federation since 1994, later becoming a full member of the European Hemophilia Consortium.