European Haemophilia Consortium
The European Hemophilia Consortium (EHC) represents the group of patient associations at European level, representing national patient organizations in 43 countries. EHC is involved in reducing the burden of the disease both on an individual level and on society as a whole. Its mission is to improve the quality of life of people with haemophilia in Europe. The consortium is engaged in the activity of health policies for hemophilia at European level, medical professionals, patients and the general public to communicate their expertise and knowledge and to show how to live with this disease.
On October 6-8, 2000, EHC held the annual conference in Timisoara, where more than 70 delegates from over 26 countries participated, confirming the role and place of the Romanian Hemophilia Association in the development of health policies for patients with haemophilia. from Romania. The same annual conference was also held on October 4-6, 2013, in Bucharest, with the participation of over 250 representatives of the associations of patients, doctors, supporters and collaborators, occasion with which was signed the memorandum between the Ministry of Health, the European Haemophilia Consortium and the Romanian Hemophilia Association .
The EHC roles are:
• Ensuring the best treatment for hemophilia patients in Europe.
• Transmission within the consortium of expert knowledge.
• Consultation with European profile institutions.
• Shares the experience of other countries and encourages cooperative activities for comprehensive care.
• Cooperates with medical and scientific professionals.
• Promoting patients’ rights.
• Monitoring and influencing the development of European health policies.
• Stimulation of scientific and research activities in the field of haemophilia.