World Federation of Hemophilia
The World Federation of Hemophilia was established in 1963 by Frank Schnabel, a successful businessman from Montreal, with severe A-type hemophilia. He had a vision, namely, to improve the treatment and healthcare provided to hemophilia patients worldwide with the help of an international organization. Initially, the Federation was composed of 6 national patient organizations, which were quickly joined by others, reaching today a number of 134 national patient associations, including the Romanian Hemophilia Association, the only association in Romania that has this status.
In 1969, the World Health Organization recognizes the importance of this entity and its international reputation, which led to the establishment of official relations between the two through the implementation of joint projects.
WFH’s vision is the one that calls for “Treatment for all”. Thus, the federation’s mission is to improve and support healthcare for people with haemophilia worldwide.
The directions are :
• improvement of treatment standards, supervision,
• advocacy and research on improving treatment for people with haemophilia,
• training, educating and informing on the problem of haemophilia and the efficient management of the resources attracted to improve and support the projects carried out by the WFH .
It is also being pursued :
• improving treatment in
countries where its granting is deficient,
• ensuring continuous development, increasing access to treatment for vonWillebrand patients and other deficiencies of coagulation factors,
• sharing knowledge and increasing capacity through information exchange,
• promoting access to efficient and safe viral products.
The World Federation of Hemophilia is positioned so that it can face the challenges that arise. Successful programs are underway that in many countries make a difference in the lives of people with haemophilia. The perspectives are challenging and in a large number, but the vision clearly shows the unity in achieving “Treatment for all “