Hemophiliac families day
Annually, starting with 2009,
the Romanian Hemophilia Association – Covasna Branch organizes the Family Day.
The purpose of the meeting is based on the need to
strengthen the links between the patients suffering from this disease and their
families.In the opening, Mr. Trucki Mihaly, the president of the branch greeted
those who met at this celebration, after which Mr. Andrei Daniel, the president
of the national association, presented the situation of haemophilia in the
country. It is normal for us to still be dissatisfied, says Daniel, but the
treatment of medicines has been significantly improved for those suffering from
this disease, especially for children through the prophylaxis program, due to
the ongoing efforts and campaigns organized by the Romanian Hemophilia
Association addressed to the Government of Romania. He showed that although
there are few hemophiliacs in number, they can put pressure on the Government
of Romania by organizing conferences and public awareness campaigns. He had
words of appreciation for the activity of our branch and shared books and
brochures on the hemophilia of the families present.
Members of the local branch also participated in these events of the Romanian Hemophilia Association.
Mr. Kiss László, Covasna County Clerk, presented the report of the local branch. Mr Kiss emphasized the unity of those suffering from this disease. The association must continue to fight, so that today’s youth will not become disabled people of tomorrow, no person with haemophilia will not live in suffering, pain, disability or with the prospect of a shorter life. Covasna branch has always been a bridge between the two national associations. With the new elections a lot has changed in the Hungarian association, but at the meeting the desire to continue the cooperation between the representatives of the haemophilic ones in Romania and Hungary was affirmed.
Further, Daniel Andrei, President of ARH, as well as Péter Nagy and Gömbös Erzsébet, members of the Hungarian Hemophilia Society board answered the questions of those present.
Mrs Gömbös was very impressed by the fact that the little ones have prophylaxis in Romania and are holding our fists to achieve the same with adults.
The second part of the meeting was intended for the joy and celebration of the event. Families discussed their problems, made new friends and acquaintances, played football.